NF Heroes

Racing4Research at Laguna Seca

RACING FOR A REASON.  NF Heroes — children and adults from around the country who every day live with the challenges of NF — are the heart of the Racing4Research program. Our Heroes, along with their family and friends, host fundraising events throughout the year then join the team for an exciting weekend of racing and support. The CTF car features the names of every NF Hero and those in attendance sign the car during what has become an annual R4R team tradition.

Enjoy a once-in-a-lifetime, empowering race weekend with the Racing4Research team - become a hero - an NF Hero!  JOIN TODAY.

Click here to learn more about becoming an NF Hero (PDF).

R4R NF Heroes

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CA - Brenda McCool

CA - Brenda McCool

Join Brenda Paola McCool in her quest to find a cure for neurofibromatosis (NF). All donations will fund the Children's Tumor Foundation's research programs. Together we can help the millions worldw...

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CA - Raymond Thomas

CA - Raymond Thomas

Raymond was diagnosed with NF1 at about 2 years old. Since then he has begun to work with a speech therapist and developed a few tumors (they have not caused complications). We have been very lucky ...

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CA - Dakota Anderson

CA - Dakota Anderson

Dakota was suspected of having NF1 at 2 months old when the doctor noticed her cafe au lait spots. She was officially diagnosed at 9 months old by a blood test. She is now 5 years old and in Kindergar...

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CA - Madison Branaugh

CA - Madison Branaugh

Neurofibromatosis is no fun. I am so thankful of your support to help us find the cure. I cannot express to you in words how much your support means to me (since I'm only 3) but I can give you a big h...

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CA - Brandon Tibbets

CA - Brandon Tibbets

Brandon Tibbets was born with NF 1. He has a bone deformity in his leg due to his NF. His bone fractured on its own when he started putting weight on his leg. The bone didn't heal on its own so surger...

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CA - Denelle Pritchard

CA - Denelle Pritchard

My name is Denelle Pritchard and I am 45 years old. I was diagnosed with NF2 at the age of 28. Since that time I have had 3 brain surgeries. The most common problem people with NF2 have is deafness an...

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CA - Andrew Vigil

CA - Andrew Vigil

Hi, my name is Andrew and I was diagnosed with NF1 when I was 5 years old. I am now 10 years old and NF has affected me in many ways.   I have tumors on my optic nerves, brain stem and now on my upp...

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AZ - Kyle Oden

AZ - Kyle Oden

Kyle was first diagnosed with NF1 in February of 2009. We took him to the eye doctor because we thought he had a lazy eye. But when the doctor dilated and looked in his eye he noticed swelling, pressu...

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FL - Dylan Brain

FL - Dylan Brain

On April 15, 2009, 6:30 pm our lives were changed forever. An MRI showed that our 3 year old son (two at that time) Dylan was diagnosed with neurofibromatosis. Dylan has tumors on his brainstem and sp...

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GA - Katherine Thompson

GA - Katherine Thompson

I want to thank everyone for visiting this site to become more educated regarding neurofibromatosis (NF). Just over the past year or so, I have felt led to become involved in helping bring awarenes...

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VA - Cameron Arnette

VA - Cameron Arnette

Cameron is a happy little 5-year-old boy. At such a young age, he is already a car enthusiast. He has attended the Daytona 24 Hours Rolex race three times, and is very excited about seeing "his" racec...

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GA - Delaney Watts

GA - Delaney Watts

I still remember the day we found out Delaney has NF - 1. I think it is one of those memories you wish you could forget. Unfortunately, that won't happen, so I face each day with the hope that Delane...

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GA - Jack Burke

GA - Jack Burke

Jack is a kind, energetic, inquisitive, adorable 8-year-old who also has NF. He is a fantastic big brother, and loves playing with Luke, his cousins and his friends. He makes his parents so proud ever...

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GA - Katelyn Watkins

GA - Katelyn Watkins

My name is Sara Katelyn Watkins. I go by Katelyn but do have several nicknames that some people call me. They are Kate-Kate, Smiley and Snickers. My parents are divorced and I live with my Dad (Randy)...

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FL - Lilly Ann Brooks

FL - Lilly Ann Brooks

Thank you for supporting the Children's Tumor Foundation. Your contribution is greatly appreciated. Your interest in Lilly Ann’s cause - finding a cure to neurofibromatosis, or NF, - is vital. We p...

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GA - Jocelyn Driscoll

GA - Jocelyn Driscoll

Hi my name is Jocelyn Driscoll. I was diagnosed with Neurofibromatosis Type 1 at age 3. Neurofibromatosis is a genetic disease that is a spontaneous mutation or it is passed down by a parent. It cause...

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VA - Evan Perdew

VA - Evan Perdew

Evan was diagnosed with NF when he was 3 months old. In 2009, doctors found a large plexiform neurofibroma in his right shoulder that cannot be removed. It is too intertwined with the nerves in his s...

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NE - John Schafer

NE - John Schafer

Neurofibromatosis is a genetic disorder that causes tumors to grow on any nerve in your body at anytime. It affects 1 in 3,000 births and can show up in any family at any time. Every person with NF li...

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IN - Jesse Markland

IN - Jesse Markland

Jesse is 5 years old and has neurofibromatosis (NF1). This means he has multiple café-au-lait spots, many small tumors, at least 1 more complex tumor, a brain tumor, low muscle tone, nerve p...

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IL - Cole Rutter

IL - Cole Rutter

My name is Cole Rutter. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots all over my body. They looked just like birth marks, so my parents were not too worried. Bu...

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IL - Tyler Neppl

IL - Tyler Neppl

Tyler was diagnosed with neurofibromatosis or NF at a very young age. He has been affected by tumor growth since he was 3 months old. As you can see in the picture one tumor affects his sight in his...

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OR - Zachary Odegard

OR - Zachary Odegard

I am 15 years old and I was diagnosed with NF 1 when I was 3 years old. Neurofibromatosis is a genetic disorder that affects the central nervous system causing tumors to grow on or in the body. NF...

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MA - Celia LaBarbera

MA - Celia LaBarbera

Looking at Celia, one only sees a vibrant, happy playful 6-year old girl who is bursting with life! Her family's pride and joy. No one would fathom what lies within her... what she battles dail...

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NY - Bailey Gribben

NY - Bailey Gribben

Hi I'm Bailey - I'm 13 years old and I have NeuroFibromatosis 2 (NF2) .This is a genetic neurological disorder that causes tumors to grow on the nerves of my brain & spinal cord .I am a re...

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NY - Kevin Martin

NY - Kevin Martin

My name is Kevin Martin. I am 12 years old. When I was only a few weeks old, I developed café-au-lait spots on my body. They looked just like birth marks, so my parents were not too worried. But two y...

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NC - Noah Roberts

NC - Noah Roberts

Noah was only five when a CT scan, after an accident, revealed that he had two brain tumors. Noah had surgery within several weeks to successfully remove the two tumors. It was not until several month...

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MI - Izzy Mick

MI - Izzy Mick

Izzy has Neurofibromatosis. This disorder can result in tumors to develop anywhere in her body, at any time. It affects 1 in every 3,000 people and is more prevalent than Cystic Fibrosis, here...

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MI - Nicolas Cohoon

MI - Nicolas Cohoon

When Nic was 2 months old I saw these cute little birthmarks, by 4 months I noticed that they were multiplying. At Nic's 4 month pediatrician appointment was the first time I heard the words Cafe' A...

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CA - Blake Robinson

CA - Blake Robinson

For the first year of his life, everything seemed normal. Blake was born at term via c-section, only because he was a large, healthy baby. Being the first child in the family, he has been spoiled from...

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PA - Michael Zazula

PA - Michael Zazula

Welcome to Michael's Racing for Research page. The past year has been full of challenges, a test of faith and fortitude but most of all a year of HOPE! With the energy and ambition that so many people...

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NY - Julia Perfetti

NY - Julia Perfetti

Four years ago our life changed drastically when our beautiful ladybug girl was diagnosed with NF. Julia was just a tiny girl, about to turn 4 years old. The facts of NF- its progressive, unpredictabl...

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NV - Taylor & Kirsten Halbert

NV - Taylor & Kirsten Halbert

Taylor and Kirsten are 7 year old identical twins with a condition called neurofibromatosis. They were diagnosed when they were 8 months old from a tumor that was discovered on Taylor's back. Neurofib...

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UT - Wyatt Enman

UT - Wyatt Enman

My name is Wyatt and I have a disease called neurofibromatosis (NF1). This is a disease that effects the central nervous system. This causes me to have cafe-au-lait spots all over my body, plexiform n...

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MA - Dylan Thompson

MA - Dylan Thompson

Dylan is 10 years old and has neurofibromatosis. He has suffered significant visual losses such as blindness in his right eye as well as lack of depth perception, binocular, and peripheral vision. He ...

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NC - Ethan Wray

NC - Ethan Wray

Our story begins, like so many others, with the news that parents never want to hear. Your child is sick, but not just with a cold or the flu. Those are managable with some warm soup and lots of ...

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SC - Nicholas Biering

SC - Nicholas Biering

If you are reading this page, you probably already know who I am, but just in case…. My name is Nicholas Biering. I am 12 years old and attend St. John's Christian Academy and I am in t...

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MO - Nicole Riley

MO - Nicole Riley

Nicole was diagnosed with a large Plexiform tumor in her lower abdomen and legs on her first birthday. There is the good, the bad and the ugly. The plexi keeps her from being able to walk on her own. ...

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Contact Us

Children's Tumor Foundation
120 Wall Street, 16th Floor
New York, NY 10005-3904

Phone: 212-344-6633

info@ctf.org