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The Children's Tumor Foundation is a national not-for-profit organization dedicated to improving the health and well-being of individuals born with neurofibromatosis (NF), the term for three distinct disorders: NF1, NF2, and Schwannomatosis. Founded in 1978, the Foundation is the driving force behind world-class research to end NF.
NF can cause tumors to grow on nerves anywhere in the body, including the brain and spinal cord. It can lead to blindness, deafness, chronic pain, disfigurement, learning disabilities, bone defects, cardiovascular problems, cancer and a wide range of other complications.
Affecting one in every 3,000 births, NF is more prevalent than cystic fibrosis, inherited muscular dystrophy, Tay Sachs and Huntington’s disease combined. It affects all races and ethnic origins and half of all cases arise in families with no history of the disorder.
The money raised through Racing4Research will fund our Drug Discovery Initiative (DDI) program to increase the number of candidate NF drugs being tested, and therefore to increase the chances that we will find therapies to treat the tumors, bone abnormalities, learning disabilities and other manifestations of NF.
The Children's Tumor Foundation is a non-profit 501(c)(3) medical foundation. For more information, please visit the CTF website.
 
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